I want to hear from you!!

1. 

   jenniferholmes

   105 Kudos

   08/05/08

   Hello,
   I have not heard from you in months. How are you? My symptoms have improved slightly. I still have alot of fatigue with dizzy, vertigo and catching other sicknesses. I took a trip to vegas in early July. Not a place for a WNV person. I came back and was sick for 3 weeks with things I caught on the trip. I wanted to let you know that PT has really helped. I have been working with a biofeedback counsler with relaxation techniques. That has really helped.
   I wish you well!
   Write when you get a chance.
   ttfn

2. 

   jenniferholmes

   105 Kudos

   06/01/08

   Howdy! Sorry it has almost been a month. I had been feeling so well I was catching up on life. I relapsed over memorial day weekend with encephalitis again and the week was a bit rocky. I decided to push through it and live life, with in reson of my health. I still need lots rest. It is late and I better get to bed. This weather is great now! A great time to enjoy it! Wish all is well with you. TTFN
   Jenn
   Original comment »

3. 

   elaine

   5 Kudos

   05/08/08

   
   Hi, Carol,
   Thanks for your response and encouragement.
   To answer your questions -
   Fortunately my husband and I are both on SSI, and he has a pension, so with Medicare we don't worry too much about the drs bills.
   I've tried many things, none of which seem to do any good - in fact they seem to make me worse.
   I'm trying some hormones, as my symptoms in part seem to be hormone related (sweats, mood).
   The md just decreased the dosage because I've become even more nauseous since taking them.
   I have problems with arm burning and anxiety. I've tried some antidepressants and Xanax, but they seem to make me worse, so I went off them.
   I also tried Lyrica, but after a week I got worse, so I thought Lyrica was the problem.
   Sleeping is a problem, and sometimes I take AdvilPM or TylenolPM. Sometimes they work and sometimes they are bad.
   I get really discouraged, and anxiety is a problem. I wish I could control it. I'll try to smile.
   
   Elaine
   
   

4. 

   elaine

   5 Kudos

   05/06/08

   Thanks again for your encouragement. Are you taking anything for the symptoms now?
   
   elaine
   

   05/07/08

   Reply from meinecke:

   hello elaine
   
   The only thing I am taking right now is for the joint pain and aches-vicodin/tramadol or just motrin depending on the levels. I am going to start a program as soon as I get my disability retirement from the Postal Service and SSI-how about you? Do you take anything else? Keep smiling-that is the best medicine.....

I want to hear from you!!